44-YEAR-OLD GAY MALE, TESTED POSITIVE IN 1988
· HELPED FOUND OPEN HAND, SERVED
AS PRESIDENT FOR THREE TERMS, NAMED OPEN HAND'S INDIVIDUAL OFTHE
YEAR IN 1999 · HELPED ESTABLISH THE AIDS WALK $ MAYOR RICHARD
M. DALEY'S POINT MAN FOR THE LANDMARK, CONTROVERSIAL NORTH HALSTED
STREETSCAPE PROJECT
· ALDERMAN MARY ANNE SMITH'S
CHIEF OF STAFF SINCE 1991
· INTHE MIDST OFA LONG STRUGGLE
WITH ALCOHOL ABUSE
"I took care of everyone else in the world, but never did
a thing for myself. I was out there being cheerful, brave, thrifty,
clean, reverent, strong, you know, helping people who've just been
diagnosed. Saying you need to talk to your therapist openly about
it, you need to be open with your friends, you need to share your
feelings. Giving all this advice to people, which was the good and
the right thing to say, and doing absolutely none of it for myself."
"Soon my life sort of became a grind of working all day in
politics and advocacy, spending nights and weekends at community
and political events doing policy and advocacy, while my personal
life drained away. I was getting very little sustenance personally.
I didn't do anything that was fun, and also the effects, between
advanced HIV disease and all these drugs, you know, made it very
hard to even spontaneously go out and do anything. I had diarrhea
that was so bad, I couldn't, for many years, go out of the house
without having to take special medication and waiting for an hour
for the diarrhea to subside. And then I knew I had five hours from
the time I had taken the pill to the time it wore off. The idea
of going and doing fun things just totally disappeared. I stopped
doing them. I was just never available. I was always busy when people
invited me to do things. I'd say, 'I can't do it, I'm tired,' I
mean, just the shame involved in that. And often at work and in
less public places the drug did wear off in the middle of stuff
and it wasn't too nice. I'd have to excuse myself from meetings.
I kept my beeper on silent so that I could look at it and say, 'Oh,
I just got paged,' run home, take a shower; change my pants and
come back to work and never let on. Stressful. Never dealt with
it, never said a word. I was slowly sinking into this little pit.
I hate to use the word -despair -but sadness, despair; that's what
it was. And after two years of sobriety, just recently I relapsed
again. I'd been told that I'd failed the last, at the time, existing
protease
inhibitor; that there really wasn't much else that could be done.
So I had all those health issues, and I would talk about it with
people, but I would just make it a declarative sentence. 'Well,
guess what my doctor told me,' and then cheerfully move on to another
topic, and never dealt with the fear or the anxiety or any of those
things. People thought, 'What a guy! What an inspiration!"'
"I would come home and inspire myself with wiskey, until I
didn't have to think about those feelings anymore, until passing
out."
"So once again, I was cheerfully back in detox Jand suddenly
realized that I have to do for myself, as a person living with AIDS
and as a person who is a substance abuser; all the things I do for
other people. It's too convenient a crutch. I look at what I do
in the community certainly as good things, but it is as much a mood
altering substance for me as alcohol and drugs. Running out and
dealing
with everyone else's problems, and stuffing my own feelings, is
just as dangerous because it's escape, it's oblivion, it's a way
to avoid dealing with what's going on with me. It's a high, absolutely.
The constant activity, the constant outward-directed stuff, even
toward really good causes, does help you stay away from yourself
and your own issues."
"It's always been important to me to present this image of-
I think this dates back to being a gay child, you know, especially
a sexually aCtive one in my young teens - of wanting to be the best
little boy in the world, and project this great image so my parents
would be proud of me, and my teacher would be proud of me, because
I had this dirty, shameful secret. After 44 years, I'm still doing
that in every part of my life. The image I project has got to be
the strong, wonderful guy who's got everything in order and at the
same time, falling apart inside. And putting myself in a box, because
to admit that would be to shatter the image. And that's what I've
got to learn to deal with. The image is nothing more than an image,
and if I can't hold myself together; then even if I want to be of
help t.o other people, and
I still do, I'm not going to be too much use lying here on this
couch with a bottle of Jack and a cat."
"This is one of the last few really shameful secrets that
I have -that I am a sort of scared, frightened, anxiety-ridden kid,
you know, who's worried about dying -that's trying to dd good, trying
to be of help to others, that's also got to admit for the first
time that I have to be of some help to myself. You can bring other
people comfort, and strength, and hope and all those things, but
if you don't have them yourself, then your own life isn't going
to be too worth living."
Reprinted with permission from the Faces of AIDS
Project and the Chicago Department of Public Health. For more information
on this project please contact Jim
Pickett.